I thought in today’s post about my medical conditions as I haven’t done a post like this in a while and I want to be open and honest about who I am and what I deal with on a daily basis. I’ve always wanted to open and honest on my blog and talking about these two conditions is one way to do that.
If you’re quite new around here I did a post quite a while ago just on epilepsy alone and you can check it out here. My epilepsy story. If you didn’t know what it is basically is when the brain can switch off or one part doesn’t work and it can lead to having a seizure. With my epilepsy it came out of nowhere, I was literally getting up and getting ready for another day at college and all I remember is blacking out and waking up with paramedics around me and I just cried and cried. If you have epilepsy yourself or know someone who does you’ll know how scary it really is, you remember nothing and are just so tired and drained after a fit. I have had this since 2013 now so nearly 5 years now and I am nearly 2 years without a fit and I couldn’t be happier, the only problem? I’m on tablets for the rest of my life.
Living with this condition is so hard and to most people I’m a happy go lucky girl and so bubbly but deep down inside I have epilepsy and I have fits and I’m terrified that one day I may have a fit and never wake up or have one in public and people will just assume I’m drunk. It’s not the part of being on tablets for the rest of my life that is hard to live with it’s the fact that some people don’t understand my illness or what to do if I ever have a fit even myself because no one in my family has ever had this before! I had to learn how to deal myself but in the progress I managed to teach my mum and boyfriend what to do if I ever had one and that is one of my biggest achievements because my mum has been my rock everytime I have a fit and always makes sure I’m ok. Over the years I have got use to living with epilepsy and in a weird way it’s a part of my now and I wouldn’t want to change back time, it’s made me grow up fast and put myself first and for once just look after myself. I’m on tablets twice a day that work and keep me alive and for that I’m so grateful.
Now with asthma a lot of people know what asthma is and what it entails but without going scientific on you because who really understands that stuff but it is basically where the lungs have some sort of spasms which can cause difficulty in breathing and let me tell you it’s horrible. With asthma it’s hard to realise what the cause is but for me I think I can put my finger on its dust and allergies of some kind but I’ll never know purely because I’ve had it since I was a small baby. There are so many different types of asthma it really does depend on the person and most people can grow out of it but not me I’ve always had it but I wouldn’t change it again because it’s a big part of me now and I’m kind of use to it if that’s the right way to word it.
Living with asthma is a lot easier than epilepsy, it can be easily controlled with an inhaler within seconds and luckily I’ve never had an asthma attack! Again like epilepsy people assume that I’m ok and that I’ve just run fast and can’t breathe but sometimes it is my asthma and I just need my inhaler, still to this day if I can control it myself I won’t take my inhaler and it’s so damaging to myself but that’s just me and I guess that I’m just ashamed of having asthma as a 23 year old grown woman but I shouldn’t be because a lot of adults also deal with asthma as an adult and I guess a lot of people don’t understand it and how to help someone but overall I’m able to control it and live my day to day life as I always have but growing up with it I’ve kind of fitted my life around it. The only thing I regret is not getting into my fitness properly because I’m scared of having an asthma attack but maybe I’ll be able to fix this in the future!
The main thing that comes with living with these two medical conditions is the lack of understanding people have about them and how to deal with the people who have it without judging them first and learning about them above their illness and luckily I have people in my life like that and I love them so much.
It’s hard living with these but they have become a part of me and I wouldn’t change it for the world because it’s made me grow as a person, put my health and myself first and just live life to the fullest amount and I don’t regret anything in my life just yet and hopefully that won’t change!
I hope this has given you an insight into what living with a medical condition is like and how it doesn’t control my life, that i control it myself!
Do you anyone with a long term medical condition or yourself? Let me know in the comments below!
Love, Jen x